My Headache Story

Note: I initially shared a version of following post on my About Page. I removed it a short while later but am now feeling called to share it here.

My ongoing struggle with headaches is still really difficult for me to talk about. I hope that through sharing a bit of my story here, those of you who also experience chronic pain will feel a little less alone.

Pain and I? We go waaaay back.

Once, I tried to estimate the number of days I’ve lost to pain.

You know, truly lost, like lying in bed, incapacitated, lost.

And, the days numbered years. Thinking about that even now fills me with this sense of heaviness, frustration, dread, and sadness.

Having a headache is not ok.

Or, that’s what I believed for a very long time.

That, somehow, having headaches, especially headaches that were so totally out of my control, that left me helpless and hopeless and utterly depressed and unable to function, were somehow a reflection on my character.

That somehow, I was weak or fundamentally flawed.

So, I set out to prove otherwise.

In high school, violent nausea would overcome me in basketball practice. I would dash for the locker room, puke, pause a moment until the shaking and gasping for breath would pass and then return to practice. Never mind that I could barely see the ball or the other players.

In college, believe me, a simple migraine wasn’t going to stop me from going out with friends. If my speech was slurred, well, maybe it could be blamed on the beer.

And, class? I remember shaking and sweating, head pounding, words swimming as I took yet another exam under the influence of extreme pain.

Work followed the same pattern.

I’ve never worked a job that offered health benefits or sick-leave.

If I didn’t work, I wasn’t paid. So, I worked.

After I’d done all that I had to do for the day, then, and only then, would I return to my darkened room and allow myself to be consumed by pain and nausea.

After years of fighting, denying, and repressing the pain, something else started to happen.

All this fear and dread began to creep in.

Yeah, I would still pretend the migraine wasn’t there until it reached a point where I simply couldn’t ignore it and was forced to give in.

But, this other thing began to happen as well.

This insidious, malignant thing.

This thing that whispered thoughts of:

‘What’s the point of doing what you love, of listening to your heart, of dreaming, of even being yourself if it can all be stopped cold by a headache.

And, you will be stopped. The migraine will come.”

I believed those whispers.

So, for a few more years, I essentially stopped.

I did just enough to get by. I tried this, I tried that. Nothing really worked. The headaches continued. Time slipped by.

A change in perspective slowly emerges.

Fortunately, at some point during the ‘just getting by’ years, I discovered and began to study Ortho-Bionomy, the style of bodywork that forms the foundation for my work.

I started applying its principle of being kind and gentle with pain to myself and to my clients. (It was much easier with my clients.)

And, I started listening to my body.

I began to notice and to pay attention to the symptoms that signaled a headache was coming.

With practice, I began to notice the symptoms of a headache earlier and earlier, sometimes even before the headaches reached the point of no return.

And, sometimes, I could even do some self-care and somehow, miraculously, not get a headache.

On occasion, even, I was able to ask for help, to let another see me helpless and vulnerable…. although, honestly, I didn’t believe anyone could help me or relieve the pain.

Which brings us to today, the present.

I still get headaches. I still have days when all I can do is curl up in bed and wait for it to be over.

I still experience the day after when feelings of depression, resentment, and hopelessness replace the physical pain.

These days, however, are fewer. And, when they do occur, I am often able to just let myself have a headache without adding the additional pain of self-hatred and self-condemnation.

The biggest difference is:  I’m no longer alone.

I now have Allies, both internal and external, to turn to when the headaches descend.

Allies who often can relieve the pain when it is beyond what I can handle on my own. Allies who, if they can’t relieve the pain, can support and hold me in the pain.

And, somehow, having Allies makes all the difference in the world.

Comment Magic:

Chronic pain is rough. I just lost yesterday to a migraine and awoke today feeling utterly helpless and hopeless.

And yet, I know these feelings, like the migraine itself, will pass.

They are simply another part of the pattern.  A pattern that has already changed considerably and is continuing to shift as I learn more about how to meet myself and how to ask for help.

There is a even a part of me that feels a certain sense of gratitude for these headaches.

I wouldn’t be here, doing this work, without my history of headaches. I wouldn’t know how to meet your pain without having such intimate experience with pain myself.

So, for today, if you feel inclined to leave a comment, I’d love to hear how you meet pain (whether physical or emotional). What works for you? Who or what are your Allies?

And, as always, just your ‘hello’ is adored as well.

The Art of Relaxed Suffering

It’s about 5 years ago. I’m in my Xin Yi (an internal martial art) class.

We are in the Bow and Arrow Stance which is similar to yoga’s warrior 1 pose – or a modified lunge. The majority of our weight is centered over our front foot.

We’ve been in this stance for 5-10 minutes already, testing our stability and balance with arm circles.

The quadriceps in my front leg are starting to tremble and shake, my shoulder muscles are burning, and sweat is beginning to blur my eyes.

That’s when Harry (the instructor) began talking about Relaxed Suffering.

Now, in Ortho-Bionomy, comfort is one of the fundamental principles.

When we are comfortable, we can relax.

When we are relaxed, tension releases and we are able to return to an enhanced state of wellbeing. There’s a bit more to it, but that’s the general concept.

Basically, this concept of comfort and relaxation leading to healing is pretty ingrained in me.

I’ve seen the application of this principle work time and time again with my clients.

It feels like magic when, as I meet their pain and tension (whether physical or emotional) with comfort and relaxation, their pain melts away.

And, naturally, I’ve extended this concept into my daily life.

If I’m hurting in some way, what can I do to bring in more comfort?

If my low back is hurting, for example, does altering the way I’m sitting relieve the pressure? Would a walk help? Perhaps it’s time to do some self-care or get some bodywork.

If I’m in a place of emotional distress, what might usher in more of a sense of comfort, relaxation and wellbeing? Talking with a wise friend? Writing? Movement, perhaps? Owl Eyes?

In short, Ortho-Bionomy has taught me a lot about how to find comfort (and how to relax) when I’m in pain.

Further, I’ve come to understand that tension and pain are simply messengers.

Messengers that show me exactly where I’m out of alignment in my body and in my life.

Which is exactly what I was discovering in my Xin Yi class.

My shaking quads, my burning shoulders, the intense torquing sensation at the base of my head, the sensation of my low back being pulled apart – all showing me exactly where the muscles were holding in my body.

Showing me exactly where my structure (my bones and joints) were out of alignment with gravity.

Showing me the parts of my body that were unable to relax, unable to let go, unable to trust my bones to hold me up.

That’s where the suffering comes in.

I was suffering (shaking, burning, sweating) because my muscles were working so hard to keep me in this rather awkward position.

I didn’t know how to relax those muscles and allow the bones of my body to support me.

I wasn’t the only one with trembling, shaking legs and arms.

Harry acknowledged our struggle. He said it was normal for it to feel really difficult at first. That it was normal for us to be trying to use our muscles to keep our bodies in the correct stance.

He said that the most important thing was to just keep focusing on relaxing and sinking into our front foot while simultaneously extending both out the heel of our back foot and out the top of our heads.

“The more you relax and trust your structure, the less suffering you will have to endure and the easier and more natural this stance will become.

Eventually, your muscles will let go and your bones will entirely support you.

Until then, practice Relaxed Suffering.

If you are going to suffer, you might as well relax while you are doing it.”

Practice Relaxed Suffering.

I wonder what might happen if:

  • we didn’t try to resist pain so much,
  • we were able to accept that pain is simply (sometimes) a part of living a full, engaged life,
  • we were able to go ahead and relax into the pain.

I think it is really easy to get into a place where resisting pain ends up simply creating additional suffering.

I see this pattern in myself a lot – wanting certain things to be different than they are.

For instance, I have lost days and days to headaches.

Many of those days were spent being super angry (and/or super depressed) over having a headache.

The anger and depression didn’t help the situation at all. Instead, they added layers and layers of additional suffering and made the headache worse.

On the days when I’ve been able to say ‘hey, I have a headache and that’s just where I am for today,” and relax a bit, my suffering has been much less.

And, interestingly, those have been the days when I’ve been able to learn more about myself and the things that actually help me get through the day with more ease.

Today, I’m starting Week 2 of my 40-Day Challenge.

My overall theme for the 40 days is Relaxation. To practice the Art of Relaxation when I’m:

  • in my Xin Yi class (now, it’s about relaxing more versus just relaxing),
  • learning something new - like a new Shiva Nata pattern,
  • feeling anxious about something – can relaxation hold and cradle the ball of anxiety I feel? Is it possible for the quality of relaxation to transform anxiety into a state of enhanced wellbeing? I’m going to find out!
  • in the middle of some conflict with my partner (or anyone). How might relaxing shift how I respond to conflict?
  • stuck or unsure of what I want or need.

In short, how might relaxing while I’m in some situation that normally causes suffering or pain shift my experience and thus my response? That is the question I am asking myself.

And, that is my question for you as well.

Comment Magic:

As always, your comments and thoughts are welcome. :)

One Small Shift in Perspective that can Change Everything

A couple of days ago Emily asked me about my headaches. It was an innocent enough question. She knows my history. She cares about me and about how headaches affect my life.

Still, as usual, I felt this tensing in my stomach as my mind began sorting through the past few weeks frantically searching for an answer that a) was honest and b) wouldn’t make me look too pathetic or complain-y.

After all, who feels comfortable around a pathetic complainer?

So, I said something about how I’d had a bad one or two and then, as usual, threw in something positive I’d noticed or learned recently. Because, well, I hate the thought of her (anyone really) feeling sorry for me.

Ok, up to this point, the conversation had followed its normal course.

But then, out of nowhere, Emily casually threw out a question that blinded me with its unexpectedness and brilliance. She inquired:

You do, sometimes, have stretches of days without headaches, right?

Woa. What?

And, just like that, everything shifted.

Yeah! Yeah! I do. Sometimes I’ll go an entire week, maybe even 10 days without even one headache!

All of a sudden, instead of counting the number of headaches I’d had in the past week or month, I could see all these shining days of headache-free-ness. And, oh my, were they beautiful.

Noticing what IS working – the first shift I help my clients make (and the concept I completely forgot to apply to myself).

My clients often come to me in pain. Whether that pain is physical or emotional makes little difference. There is something going on in their bodies or in their lives that is causing discomfort, disconnection and overwhelm.

This something has become the primary thing in their lives and has consumed their awareness to the extent that very little other is noticed or acknowledged.

So, one of the first questions I ask my clients (after they’ve described the pain in detail), is: Where in your body do you feel good? Are their any places in your body that feel comfortable to you right now?

Almost always, they become quiet, their bodies become still. Then, with a kind of wondering quality in their voice they say, “Wow, I’ve never been asked that before. I’ve never paid attention to what feels good.”

Why this shift in perspective is so important.

It is so easy to get pulled into something that isn’t working and completely lose sight of all the things that are working.

Making this shift from focusing on the pain (what’s not working) to the things in our lives and bodies that are working is crucial.

It allows us to gain perspective. It puts everything back into its proper place. It allows us to gain some distance from our pain. From there, we are able to make better decisions and be more pleasant people. Yay! (pleasant people rock).

In short, it brings us back into right relationship.

Note: focusing on what’s working does not mean we ignore, repress or deny the pain (or the things that aren’t working). Rather, shifting our focus to what is working helps us realize that pain is part of the picture vs the entire picture.

Let’s take 5 minutes and find 10 things that *are* working.

Get out a piece of paper and a pen. Think about some area in your body or life that causes you distress. Something that can pull you in and cause you to lose sight of the bigger picture.

Now, make a list of 10 things in your life that are working. The things on your list can be anything, it doesn’t matter at all how big or small they are.

If you are really stuck in that place of nothing’s working, then you may have to start really small. Perhaps even something like “the clock on my stove is telling the right time.”

When I’m particularly stuck, I find it helpful to go outside, to notice the trees (yes, they are still growing) and the birds (yes, they are still flitting about).

Try to make 3 of the items on your list things that are working in your body.

It can be as simple as, hey, my heart is still beating.

Or you can take a moment, check in and see if there is any part of your body that feels comfortable right now; if there are any sensations anywhere that you rather enjoy.

For instance, right now I notice this tingling sensation in my feet that feels really nice.

Once you have your list, settle in and (however briefly) allow yourself to experience a moment of gratitude for those 10 items on your list.

Well done.

My list:

  1. My computer rocks.
  2. My fingers enjoy typing
  3. The bottoms of my feet feel tingly
  4. The sun is shining
  5. I’m working from home
  6. I am able to pay my rent and bills this month
  7. My legs feel strong and capable
  8. I’m doing work that is meaningful to me
  9. The buds on the tree outside my window are becoming leaves
  10. My boyfriend loves me – somehow, and sometimes, despite myself :)

Heads up! In two weeks…

Those of you on my list will receive a gift from me – a beautiful little (7 page) ebook. This ebook describes the one technique I use every day to help me shift out of pain and into noticing what is working.

If you aren’t on my list yet, you can sign up here. :)

See you then.

Nothing Works: Is that True?

Today, I’m going to do things a bit differently. Instead of the usual article plus self-care suggestion, I’m going to share with you an exercise I did to help me find right relationship at a time when I was experiencing extreme pain. And, if you want, you can do the exercise with me!

Last Thursday, I had a horrible headache. One of those headaches that totally debilitates and renders everything other than the pain meaningless.

During a moment when the pain was slightly lessened, I became aware of the thought “nothing works” (referring to headaches).

I’ve been reading a lot of Byron Katie lately and decided to apply her process of inquiry to this thought. For those unfamiliar with her Work, here’s a super quick summary:

She uses 4 questions plus a turnaround to examine whatever thought is causing distress in the moment and to help open the mind to other possibilities. Here’s the process as I applied it:

The thought:

Nothing works.

Question #1 – Is that true?

Um, well, it feels that way. I guess, though, if I have to give a straight yes or no answer, the answer is No. Because, eventually, the headache does go away so something must work for that to happen. So, ok, the answer is No.

Question #2 – Can I absolutely know that it’s true?

Nope, guess not. (there is a ‘dammit’ implied at the end of that sentence).

Question #3 – How do I react when I believe that thought?

Crap. I hate this question. Well, I feel totally helpless. And hopeless. And defeated.  And depressed. Filled with dismay. I think about all the things I wanted to do with my day and am filled with resentment and frustration.

I completely close down to any suggestions for what might work – ‘No, I’ve already tried that. It doesn’t work. It’s not that kind of headache; it’s one of those, the ones that don’t respond to anything.” I think that no-one or no-thing can help me or relieve the pain.

I spend the entire day in bed, afraid to move because movement intensifies the pain and also causes increased nausea. I feel pathetic and tell myself what a loser I am and berate myself for not having figured it out yet. I mean, it’s been over 2 decades already. Despair and depression overwhelm me.

Question #4 – Who would I be without the thought?

Well, the pain would still be here. I think.

But, I guess I’d be more open to trying things. I’d be more open-minded and curious. I’d be willing to keep trying things just to see if it worked this time. I’d be more creative in my thinking and might even discover some approach or way of being with the headache that I haven’t tried before.

I’d likely still be lying on the couch all snuggled up but I wouldn’t be layering emotional distress on top of the physical pain. It would just be me and the headache, hanging out, getting to know each other. Somehow, that actually feels rather relieving.

The turnaround (the opposite of the original thought):

Everything works. (what?!?)

Is that thought as true or truer than the original thought? Find 3 reasons why it is true.

Ok, before I just say NO, absolutely not, let me see if I can come up with 3 things that have worked on occasion. Here goes:

  • time
  • Ortho-Bionomy
  • stretching
  • hot showers
  • getting in touch with the emotion underneath the headache
  • journaling
  • meditating
  • being outside
  • exercise
  • taiji
  • qi gong
  • yin yoga
  • volunteer work in Forest Park
  • being in nature in general
  • meeting the headache as energy/sensation vs pain
  • cranial work
  • my Quantum Technique code
  • dancing
  • positional release – positioning my neck in such a way that the tension is relieved
  • dialoguing with the pain
  • breathing
  • following the pain down my neck and into my heart – focusing on my heart vs my head
  • sleeping
  • using my migraine essential oil stick

So, things got a bit bizarre when I tried to name 3 things that have worked. All of a sudden more and more things started jumping up and down demanding my attention. And, the list just kept getting longer and longer.

The final question:

Does everything work? Is ‘everything works’ as true or truer than the original statement of ‘nothing works?’ Yes, it absolutely is. And, I have thing after thing that has worked to prove it.

Something works every time. And yes, this headache was the one that all my self-care techniques have the least affect on but TIME does come through even for this one. Knowing that, I was able to relax into having the headache, to quit resisting what was happening and just allow it to run its course.

There are many other thoughts around headaches I could (and will) spend time examining (I should have this whole headache thing figured out already, for example).

For You:

For you, my question is this: what thoughts do you think when you are in pain? Is this a process that might be beneficial for you? If so, give it a try and, of course, leave a comment letting me know how it went.